First Steps After A PARKINSON'S DIAGNOSIS

After a diagnosis of Parkinson's disease, the next steps can feel overwhelming. Taking them one day at a time can help.

Allow yourself time to process things before making big decisions
Share the news with trusted family, friends, or counselor as the emotional impact is real
If faith is part of your life, consider talking with a religious leader

Talk with your general practitioner about a referral to a neurologist (a doctor who specializes in the brain and nervous system) or even better, a movement disorder neurologist.
Talk with Promotores about locating a doctor if you do not have one and also how this condition may impact daily life and work.

Learn about the condition, its symptoms, and ways to manage to help reduce fear
Be honest with your doctor about specific symptoms and ask for support so they can best help.

Allow family, friends, and community members to provide help with transportation assistance, meal prep, and social support.
Look for local support groups including in person and on-line, community centers, local churches, or other health centers

Medications can help manage motor and non-motor symptoms
Therapies including occupational, physical, and speech can provide guidance, strategies, and training for lifestyle adjustments including issues with mobility, daily living activities like dressing or meal prep, voice and swallowing
Setting up a daily routine with exercise, nutritious meals, and good sleep can help with symptom management

Do meaningful things that can help reduce isolation and protect your well-being
Stay engaged with community activities, church, volunteer work
Set realistic goals and participate in physical activities including exercise classes such as yoga, Tai Chi, Rock Steady Boxing
Engage in cognitive activities including puzzles, games, reading and writing
Practice mindfulness and other calming activities like meditation or breathing exercises

Prepare early to reduce the stress. Maintain independence about life decisions by communicating clearly and early with family members and medical professionals.
Consider current and future housing needs (make it safe by installing grab bars, placing non-slip mats, evaluate stairs for the future, etc.)
Share your preferences and goals with loved ones
Plan for cognitive and physical changes and what your preferences are if decision-making becomes impaired
Plan for long-term care needs like in-home care or adult day programs
Discuss legal matters including power of attorney, advanced directive, and insurance benefits