clinical trials & Resources
Participating in clinical trials can offer significant benefits to people with Parkinson's disease (PD), both personally and for the broader Parkinson's community. Here's why it can be good:
1. Access to cutting-edge treatments
2. Closer medical monitoring
3. Contribute to scientific progress
4. Sense of empowerment and purpose
5. Sometimes financial support
6. Improve diversity in research
While there are clear benefits, clinical trial participation can also involve risks (side effects, ineffective treatment, time commitment), so it’s important for potential participants to:
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Talk with their doctors
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Understand the trial's purpose, risks, and benefits
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Review the informed consent carefully
PEG STUDY
Gut Microbiome and Parkinson's Disease
Learn more about UCLA's Central Valley PEG Study. The goal of this study is to explore how gut bacteria may influence brain health and the possibility to lead to the development of new treatment options for people with Parkinson's.
Physical therapy interventions
For People with Parkinson's Disease (In/Near Fresno)
Learn more about the CSU Fresno's physical therapy study. They are looking for participants to help them study new PT treatment intervention techniques to manage Parkinson's symptoms. Participants receive a $50 gift card for study completion.
Michael J Fox Foundation
Key Research Initiatives
In addition to funding millions of dollars in research, The Michael J. Fox Foundation (MJFF) spearheads their own key initiatives to advance understanding and treatment of Parkinson's disease. Their landmark programs have changed the landscape of Parkinson's research. Participate and help today by clicking here.
helpful resources
Acadia Pharmaceuticals -- More to Parkinson's/Hallucinations and Delusions
More to Parkinson’s is an educational campaign, sponsored by Acadia Pharmaceuticals Inc., that aims to increase awareness among caregivers and patients of the existence of hallucinations and delusions as common parts of Parkinson’s disease. The campaign is anchored by a series of stories shared by Ryan and his mother, Tammy, as they relay their personal experiences from the perspective of a son and caregiver as well as a wife, mother, and caregiver, over the course of Jim’s disease. The multichannel campaign includes videos spanning a wide range of topics focusing on Parkinson’s-related hallucinations and delusions, covering who is at risk, what symptoms may look like, how to discuss symptoms and treatment options with a doctor, and more.
CND Life Sciences -- Skin-based Test to Help Diagnose Parkinson's
CND Life Sciences supports the care of patients facing the potential diagnosis of a neurodegenerative disease. CND’s Syn-One Test® helps clinicians diagnose suspected synucleinopathies, such as Parkinson’s disease and dementia with Lewy bodies, using skin biopsies to detect and visualize misfolded alpha-synuclein located in nerves in the skin with high accuracy. The Syn-One Test is performed by medical providers and sent to CND’s CLIA-certified and CAP-accredited laboratory located in Scottsdale, AZ. To learn more, please visit cndlifesciences.com